Diagram magazine innovative oncology solutions

Living with Haemophilia

Haemophilia is quite rare. About 1 in 10,000 people are born with it. Haikal Haziq shares his story, revealing what life is like with this rare disease.

Worldwide, 350 million people live with a rare disease, and 75% of them are children1. Haemophilia is a serious, inherited bleeding disorder in which a person’s blood does not clot properly, leading in severe cases to uncontrolled bleeding, either spontaneously or after minor trauma. It is a rare disease, and the burden and incidence is not as high as other well-known diseases. However left untreated, bleeds can lead to irreversible joint damage and intracranial bleeds, and potentially cause brain development problems which may be life-threatening2. Timely intervention can mean the difference between life and death.

While innovations have been made, more needs to be done to improve diagnosis and treatments for haemophilia and improve the quality of life for those who need it most. Watch this video as 21-year old Haikal Haziq gives us insight into his life with haemophilia, and how effective diagnostics and treatment options have given him confidence and assurance to live a full life beyond haemophilia.

Click here to bust some myths on haemophilia.

Diagram Dialogues

 Subscribe to our podcast to hear expert insights from the world of diagnostics
References

1What makes a rare disease rare? 2022. Retrieved from: https://www.roche.com/stories/roche-in-rare-diseases

2Haemophilia A. 2022. Retrieved from: https://www.roche.com/solutions/focus-areas/haematology/haemophilia

You Might Also Like

Inspirational Stories

The Prevalence of Thalassemia

Roche Diagram healthcare magazine and Dr Vip Viprakasit examines Thailand's rise as a centre of excellence for thalassemia screening and diagnosis.

Read More
Inspirational Stories

Living with Thalassemia

In a Roche Diagram exclusive, Arinthorn Patchimpihong shares her inspirational story on what it means to live with thalassemia.

Read More

Roche Diagram Magazines

Browse or download past issues of Roche publications below.

EDITION 2022

Volume 11

EDITION 2021

Volume 10

VIEW MORE

EDITION 2021

Volume 10

DOWNLOAD

EDITION 2020

Volume 8

DOWNLOAD

EDITION 2020

Volume 7

DOWNLOAD

EDITION 2019

Volume 6

DOWNLOAD

EDITION 2018

Volume 5

DOWNLOAD

EDITION 2018

Volume 4

DOWNLOAD

EDITION 2018

Volume 3

DOWNLOAD

EDITION 2017

Volume 2

DOWNLOAD

EDITION 2017

Volume 1

DOWNLOAD
Top