You are about leaving the Roche Diagram website now.

Cancel

Living with Haemophilia

Haemophilia is quite rare. About 1 in 10,000 people are born with it. Haikal Haziq shares his story, revealing what life is like with this rare disease.

Worldwide, 350 million people live with a rare disease, and 75% of them are children1. Haemophilia is a serious, inherited bleeding disorder in which a person’s blood does not clot properly, leading in severe cases to uncontrolled bleeding, either spontaneously or after minor trauma. It is a rare disease, and the burden and incidence is not as high as other well-known diseases. However left untreated, bleeds can lead to irreversible joint damage and intracranial bleeds, and potentially cause brain development problems which may be life-threatening2. Timely intervention can mean the difference between life and death.

While innovations have been made, more needs to be done to improve diagnosis and treatments for haemophilia and improve the quality of life for those who need it most. Watch this video as 21-year old Haikal Haziq gives us insight into his life with haemophilia, and how effective diagnostics and treatment options have given him confidence and assurance to live a full life beyond haemophilia.

Click here to bust some myths on haemophilia.

Diagram Dialogues

 Subscribe to our podcast to hear expert insights from the world of diagnostics

References:

1What makes a rare disease rare? 2022. Retrieved from: https://www.roche.com/stories/roche-in-rare-diseases

2Haemophilia A. 2022. Retrieved from: https://www.roche.com/solutions/focus-areas/haematology/haemophilia

You May Also Like

11 September 2019

The Prevalence of Thalassemia

Roche Diagram healthcare magazine and Dr Vip Viprakasit examines Thailand's rise as a centre of excellence for thalassemia screening and diagnosis.

Read More
11 September 2019

Living with Thalassemia

In a Roche Diagram exclusive, Arinthorn Patchimpihong shares her inspirational story on what it means to live with thalassemia.

Read More
15 November 2022

Strengthening Diagnostics for Infectious Diseases Elimination in Asia Pacific

While the ability to engage with the world of healthcare is determined by the availability, accessibility, and efficiency of healthcare systems and infrastructure; people’s willingness to engage with the healthcare…

Read More

SHARE